| 1. |
- Iwarsson, Susanne, et al.
(författare)
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Understanding User Involvement in Research in Aging and Health
- 2019
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Ingår i: Gerontology and Geriatric Medicine. - : SAGE Publications. - 2333-7214. ; 5
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Tidskriftsartikel (refereegranskat)abstract
- User involvement in research is advocated as an avenue for efficient societal developments. In this article, we identify potentials, problems, and challenges related to research on aging and health, and identify and illustrate research priorities using an evolving research program as an example. Involving user representatives in the development phase, the UserAge program engages researchers at four universities in Sweden. The program builds upon previous and ongoing research with user involvement. The goals are to maximize the impact of user involvement, enhance the execution of high-quality research, increase the knowledge about what difference user involvement can make, and evaluate the impact of research about and with user involvement. Taken together and communicated in the international scientific community as well as in a wide range of public arenas, the empirical results, capacity-building, and modeling efforts of UserAge will have an impact not only on the present situation but also on the future.
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| 2. |
- Hultqvist, Sara, 1977-, et al.
(författare)
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Conditions for uptake of evidence-based knowledge in municipal care for older people in Sweden : a developmental evaluation
- 2022
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Ingår i: BMC Research Notes. - London : BioMed Central. - 1756-0500. ; 15
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Tidskriftsartikel (refereegranskat)abstract
- Objective: The objective of this paper is to describe the initial phase of a long-term collaboration initiative between a municipality and the Faculty of Medicine at a university in Sweden. The overall ambition of the collaboration is to strengthen the quality of care for older people. The concrete goal is to equip academically trained registered health care professionals (HCP) with tools for transferring evidence-based knowledge into practice. As municipal healthcare for older people is mainly carried out by staff lacking academic education, reg. HCP are key actors to bring in and consolidate an evidence-based approach in this setting. Developmental evaluation (DE) has been used to evaluate four separate activities in the initial phase. The activities where sequenced in a cumulative design to provide knowledge for further development of adequate tools.Results: The cumulative design originally planned did not fit the internal logic of the municipality. Therefore, workflow and pace adjustments were made to proceed towards the joint ambition; the creation of fruitful conditions for the uptake of evidence-based knowledge. Long-term collaboration between academia and organizations outside academia demands a sensitive and flexible research approach, recognizing that collaboration implies mutuality and restricts the sovereignty of academia in designing research.
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| 3. |
- Hultqvist, Sara, 1977-, et al.
(författare)
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Collaboration in Grant Proposals and Assessments in Ageing Research – Justification or a Quest for a Collaborology?
- 2021
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Ingår i: Social Epistemology. - : Taylor & Francis. - 0269-1728 .- 1464-5297. ; 35:5, s. 427-440
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Tidskriftsartikel (refereegranskat)abstract
- Orientation towards application, transdisciplinarity and social distribution are prominent ideas when policy prescribes how to conduct research on complex, real-world issues. Issues dealt with in ageing research are both epistemologically complex and politically contentious. By using the metaphor of ‘travelling ideas,' we have followed these ideas on their journey into 17 approved grant proposals on ageing and their assessments in Sweden in 2016. We considered collaboration as the modus operandi of the implementation of the three ideas. Thus, we analyzed how plans for collaboration were described in the data. The result shows that although the ideas were clearly present in the policy documents, they were almost eviscerated in the majority of proposals and assessments. Only three out of 17 proposals reflected the ideas. Thus, collaboration as an aspect of research was not codified. As long as there is no established way of describing collaboration, researchers struggle to invent their own tentative versions, that is, a collaborology.
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| 4. |
- Hultqvist, Sara, et al.
(författare)
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“Why involve older people in research?” Revisiting Alan Walker’s earlier editorial based on recent experiences from the UserAge research programme
- 2023
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Ingår i: Research Involvement and Engagement. - : BioMed Central (BMC). - 2056-7529. ; 9:1
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Tidskriftsartikel (refereegranskat)abstract
- Posed 16 years ago in a much-cited editorial by gerontologist, Alan Walker, “Why involve older people in research?” is a question that has since inspired researchers in many countries and from diverse disciplines. In Sweden, researchers and older people have been collaborating in the 6-year UserAge research programme, focusing on user involvement in research on ageing and health, UserAge aims at contributing to an in-depth understanding of the challenges and benefts of user involvement in diferent phases of the research process. Approaching programme completion, the authors take the opportunity to dwell upon current reasons for and modes of user involvement in ageing research in light of the argument originally put forward by Alan Walker back in 2007.
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| 5. |
- Jönson, Håkan, et al.
(författare)
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SAPO – en modell för samverkan mellan forskare och aktörer utanför akademin inom området äldre och åldrande
- 2021
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Ingår i: Äldre i Centrum Vetenskapligt supplement. - : Stiftelsen Stockholms läns Äldrecentrum. - 2003-9050 .- 2003-9069. ; 1:1, s. 5-14
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Tidskriftsartikel (refereegranskat)abstract
- En åldrande befolkningen har identifierats som en samhällsutmaning. En tydlig utveckling inom forskning om sådana utmaningar är krav på medverkan från patientgrupper, brukarorganisationer och andra aktörer utanför akademin. Syftet med artikeln är att introducera en modell för utformning och värdering av samverkan mellan akademiska forskare och aktörer utanför akademin. Modellen bygger på en genomgång av internationellt etablerade traditioner och ramverk för sådan samverkan och ramas in av komponenterna syfte, aktör, process och omfattning (SAPO) eller enklare uttryckt genom frågorna: varför, med vem, när och hur mycket? Med hjälp av modellen kan både forskare och aktörer utanför akademin föra mer systematiska och kritiskt värderande resonemang om samverkan. Det kan i sin tur leda till effektivare arbetsformer och nyttiggörande av resultat från det mångfasetterade forskningsområde som rör den åldrande befolkningen.
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| 6. |
- Malm, Camilla, et al.
(författare)
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What motivates informal carers to be actively involved in research, and what obstacles to involvement do they perceive?
- 2021
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Ingår i: Research Involvement and Engagement. - : Springer Science and Business Media LLC. - 2056-7529. ; 7:1
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Tidskriftsartikel (refereegranskat)abstract
- Background: Due to demographic changes and a strained public sector operating in many countries globally, informal care is increasing. Currently, at least 1.3 million adults in Sweden regularly provide help, support and/or care to a family member/significant other. With no sign of an imminent decrease in their caring activities, it is important that informal carers are considered as a key stakeholder group within research that affects them, e.g., the co-design of carer and/or dyadic support interventions. The objective of this descriptive, quantitative study was to investigate informal carers’ perceived motivations and obstacles to become involved in research. Methods: A cross-sectional survey design was adopted, using first-wave data from a panel study. The data, collected in Sweden between September 2019 and March 2020, included survey responses from 147 informal carers who were either aged 60+ years themselves or were caring for someone who was aged 60+ years. Results: Our main results showed that informal carers are, in general, interested in research. Slightly fewer were interested in becoming actively involved themselves, but older age was the only characteristic significantly associated with less interest of being actively involved. Two latent motivational dimensions emerged from the factor analysis: ‘family motivation’ and ‘the greater good motivation’. These, according to our results, almost equally valued dimensions, described the differing reasons for informal carers to become involved in research. The most common perceived obstacle was lack of time and it was reported by more women than men. Conclusion: Our study contributes with new knowledge of informal carers’ perceived motivations and obstacles regarding carer involvement in research. Paying attention to the differing motivational dimensions held by informal carers could help researchers create conditions for more inclusive and systematic participation of informal carers within research. Thereby, increasing the opportunities for research that is deemed to be of higher societal impact. IRRID (International Registered Report Identifier): RR2-10.2196/17759.
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